Photograph courtesy of Michele L. Hopkins

The Zebra Network is taking charge to make positive changes in our world, by the minute!

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The Zebra Network works to increase awareness, education, advocacy and support for patients with Ehlers-Danlos Syndrome.

None of this is possible without support from YOU. 

 

TZN is a series of relationships and partnerships woven to form a unique network. Through personal experiences and professional resources, we have formed The Network to better the lives of those with and affected by Ehlers-Danlos Syndrome

YOU can join the fight against Ehlers-Danlos Syndrome by becoming educated about the disease, learning what we do, joining our network for free, and by giving your support.

 

New Partnerships!

The Zebra Network has formed partnerships with Care+Wear and Synchronicity Boutique.

Care+Wear have ultra-soft, antimicrobial PICC line covers and Port access shirts for youth and adults! Our members can use the code "ZebraNetwork17" for 10% off! 

Synchronicity Boutique, located in Pikesville, Maryland, is a special occasion clothing store dedicated to making every customer look and feel her best! Their sizes range from 000 to 30W and can match any style. Every customer is their most important customer!


In the news:

Founder, Victoria Graham, was recently recognized for sharing her battles with Ehlers-Danlos Syndrome. First published with Babble and BBC, her story got international attention in Teen Vogue, Allure, Yahoo!, FOX News, MSN, Huffington Post, Washington Post, ABC World News with David Muir, Good Day DC, and more! Articles have been in English, Spanish, Russian, Greek, Italian, French, Arabic, and Dutch! 

Advocacy through the news is what we strive for! The more people who simply hear the term "Ehlers-Danlos Syndrome" increases recognition and awareness of the disease. Way to go, Victoria! 

     View the original BBC article and video, here


UPDATE

New Research Papers are coming out... what's the deal?

Great question! A series of papers were released from the American Journal of Human Genetics on March 15th, 2017 on Ehlers-Danlos Syndrome(s). 

These classification documents have been released and opened to the public! We have directed copies of these research articles easily available to you, here. Everyone here at The Zebra Network understands that this process is frustrating, scary, and confusing - it is our goal to be here for YOU and go through this journey with you. 

As we always say, our #1 goal is to provide actual patient support - this means that you are not on this journey alone and we will be here, with you, every step of the way. 

Outline of New Classifications can be found here

Links and Downloads to the Newly Released Articles can be found here

(free membership sign in required)


Photograph taken at Miss Appalachia 2016

Photograph taken at Miss Appalachia 2016

what we do

The Zebra Network strives to provide support to patients across the globe by working to promote awareness, increase education, improve advocacy, and provide unique support to patients with EDS. 

Learn More →

Photography sponsored by Ross Lewin, HoCo Photo

Photography sponsored by Ross Lewin, HoCo Photo

our Network

Join The Zebra Network for free!

Members of The Zebra Network receive free patient support resources, including patient-to-patient support, access to our medical professional network guide, inclusion in our community network sponsorships and further support in the battle against Ehlers-Danlos Syndrome. 

The Zebra Network Overview →

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