BackpackHealth Logo1.jpg

BAckpack Health

Backpack Health is a health tech company building tools to help people manage their health details, care and communication.

This app and online resource makes it easy for everyone to access, own and control all of their health information to support better health for themselves, their loved ones, their communities, and for us all.

They have provided a temporary promotional code for EDSers to receive a discount!


Being your Own Advocate In A medical setting

Jonathan Rodis is no stranger to being put down because of his medical conditions. In his original written piece he explains, "being your own advocate not only improves the quality of your care in the future, but also provides your local caregivers, physicians and hospital staff a better understanding of what your disorder or condition is."


Breathing Thoughtfully

The 1st step in Pain Control: One breath at a time. 
Rachel Horcher is the owner of 3Dimensional Wellness, Inc. She is a Licensed Massage Therapist, Movement Specialist, Yoga Instructor and Life Coach.
As an EDSer herself and mother of 2 Kids with EDS her focus has shifted to working with Pain and trauma.

Challenges of having a Disability

He looked at me and said, "You're disabled?" 

In this original piece, Jonathan Rodis explains how to awaken friends, family, and colleagues about what it is like to live with a disability, or any medical challenge, on a day-to-day basis.

FullSizeRender 4.jpg

EDS "Life Hacks"

Peppermints, straws, and soccer balls, oh my! ...?

Tips, tricks, and helpful hints that we have found useful for coping with EDS on a daily basis!

Screen Shot 2017-09-04 at 2.08.44 PM.png

Having a Friend with POTS

What is it like to have a friend or be a friend who has Postural Orthostatic Tachycardia Syndrome? Is it difficult to go out in public? Does it make your friendship any less?

Ashley and her friend, Mary, answer these important questions for us! 


A Parent's Guide to 504, PEP, and IEP for k-12

Help within the Classroom: A Parent Guide's to 504, PEP, and IEP for K-12 kids with EDS from a Teacher and a Parent of 2 Zebras


SaltStick Vitassium

"SaltStick Vitassium has been formulated to provide salts to help maintain electrolyte levels, support healthy blood pressure, reduce fatigue, support cognitive function, and reduce dizziness due to low blood pressure."

Screen Shot 2017-09-04 at 2.44.50 PM.png


Splints and Braces

The world of braces and splints can be quite overwhelming and confusing. With EDS, we often need braces for our joints - sometimes we will need to wear a brace one day, but not the next. 

Christina describes some of her most used braces and splits and goes into detail about many of the options out on the market.