Photograph courtesy of Michele L. Hopkins
Patient Resources
The Zebra Network strives to provide support to all patients, no matter where in the world they reside.
We are happy to provide a variety of resources and benefits to our members including educational resources, one-on-one patient guidance, an "EDS Friendly" medical professional and community network, a Patient Guidebook, and more!
Patient Support
The Zebra Network makes every effort to provide one-on-one support for all patients regardless location and financial status.
Support may come in various forms: guidance after a diagnosis, local accompaniment to a doctor's appointment, help finding the appropriate medical professional, arranging medical transportation, addressing physical needs of patient and caretakers before/during/after surgery, providing Rays of Sunshine, and beyond!
To receive support, we ask that you tell us a little about yourself, your need, and submit a formal request, below.
RAYS OF SUNSHINE
Through unique partnerships with the Miss America Organization, friendships formed during stays at the Ronald McDonald House Charities, interactions through social media, and a variety of community events, the "Rays of Sunshine" program has been formed.
"Rays of Sunshine" provides unique physical, mental and emotional support to patients with Ehlers-Danlos Syndrome and like conditions. From simple cards sent in the mail, friendship bracelets, blankets, and even warrior glam bags, Rays of Sunshine extends uplifting positivity to patients, from patients.
This comprehensive program forms a network that is key to increasing the quality of life for our patients! To learn more or make a donation to the Rays of Sunshine program, please click here.
If you are already a member, please enter the Member Network Portal, here.
If not, please join us for free to access to member benefits and resources. By joining, you will also be the first to know when additional information and support becomes available!
Whether it is managing daily life, finding a medical professional, or seeking support during surgery, The Zebra Network is a necessary resource. Your assistance in helping us provide this support is crucial!
Do you know a patient who could use support? Nominate them, here.