How to Get Involved
How can you get involved in Rare Disease Day? Lots of ways!
Share your own story of life with a rare disease; Check out different graphics to post on your social media accounts; Share posts from other people and organizations to increase awareness; Join in on a local Rare Disease Day event; Pledge your morning coffee and make a small donation to an organization...
...the possibilities are endless! Get creative to #ShareYourRare
Join in on events happening Near you
Visit the Rare Disease Day Events website to find events in your area
Take part in the #15FORRARE CAMPAIGN
What would you say if you had 15 seconds to advocate for a rare disease?
- Take a video answering "I care about rare because..."
- Upload your 15 second video to the Global Genes campaign website
- Share your video on social media using the hashtag #15forRare and #GlobalGenes
Graphics and Sharable resources:
- Global Genes - 2018 World RARE Disease Day Assets
- Global Genes Interactive PDF
- Rare Disease Day Downloadable Media Pack
Social Media Hashtags to use and follow: