Rare Disease Day

Information, organizations, and resources

“On World Rare Disease Day and leading up to this day, people around the world come together to raise awareness of rare diseases and the impact on those affected”
— Global Genes

Show your rare. Show you care. 

This is the official video for #RareDiseaseDay 2018! Show your rare. Show you care. Rare Disease Day is a patient-led campaign that brings together millions of patients, families, carers, medical professionals, policy makers and members of the public in solidarity - everyone can get involved!